Al Jazeera English published this video item, entitled “Patients struggle to afford new drug for muscular atrophy” – below is their description.
Today is Mila Marzouk’s first birthday, but it is unlikely she will see her second unless her parents can find more than $2m.
Mila has skeletal muscular atrophy, a genetic disease that affects more than 10,000 babies every year.
A new drug can save them, but in most places, it is not funded.
Al Jazeera’s Charlotte Bellis reports.
Ayah Lundt – https://helpayah.dk/EN/index.html
Mila Marzouk – https://www.gofundme.com/f/baby-health-fundraiser?utm_campaign=p_cp+share-sheet&utm_medium=copy_link_all&utm_source=customer
–
Al Jazeera English YouTube Channel
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