Global News published this video item, entitled “Coronavirus: How young Canadians with rare diseases endure in the face of COVID-19” – below is their description.
In the backyard of their home in Horseshoe Valley, north of Barrie, Ont., smiling three-year-old Josef Gortnar is proudly pushing his big sister on the swings.
“It’s bittersweet because he’s taking a big brother role, even though he’s the little brother,” said Terri Gortnar, the children’s mother.
Claire Gortnar, who is about to turn six, does not respond to Josef as he pushes her on the swings, but she is smiling and appears to be enjoying it.
She is one of around 15 Canadians with CL2 Batten Disease, an inherited nervous system disorder. No specific treatment is available to cure it, but treatments exist to manage the symptoms.
Claire is not alone in her battle. It may not look like it, but happy-go-lucky Josef also has Batten Disease.
It’s been a long, difficult journey for the family since the children were diagnosed, and the COVID-19 pandemic has not helped.
For more info, please go to https://globalnews.ca/news/7697567/coronavirus-canadians-rare-diseases/
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